Ethics in Research

<body topmargin=0 leftmargin=0 marginheight=0 marginwidth=0> <table cellpadding=0 cellspacing=0 border=0><tr> <td valign="top" colspan=2 height=140 BGCOLOR="#9966CC" TEXT="#080000" bgproperties="fixed" background="04100a20ezthtv.gif"> <div> <A HREF="index.htm" TARGET="_top" TITLE="Kings Psychology Network"><U><B>home</B></U></A><B>     |     </B><FONT SIZE="5" COLOR="#000099" FACE="Papyrus" ><I><B>King's Psychology Network</B></I></FONT></div> <div> <A HREF="id142.htm" TARGET="_top" TITLE="Related Learning Links"><U>Related Learning Links</U></A>   |   <A HREF="id143.htm" TARGET="_top" TITLE="References, Libraries, Online Journals, "><U>References, Libraries, Online Journals, Style Manuals & Study Guides</U></A>   |   <B>Ethics in Research</B>   |   <A HREF="id197.htm" TARGET="_top" TITLE="Research Tools Methods"><U>Research Tools & Methods</U></A>   |   <A HREF="id281.htm" TARGET="_top" TITLE="Writing Research Reports"><U>Writing Research Reports</U></A>   |   <A HREF="id282.htm" TARGET="_top" TITLE="Research Types"><U>Research Types</U></A>   |   <A HREF="id303.htm" TARGET="_top" TITLE="Data Analysis"><U>Data Analysis</U></A>   |   <A HREF="id304.htm" TARGET="_top" TITLE="Research Presentation"><U>Research Presentation</U></A></div> <div> <B>Ethics in Research</B></div> <DIV ALIGN="LEFT"></DIV> <div> </div> </td> </tr><tr> <td valign="top" width=210 BGCOLOR="#CCFF66" TEXT="#080000"> <bR> <bR> <div> <A HREF="id200.htm" TARGET="_top" TITLE="Discussion ForumPsy 211"><U><I><B> Psy 211-Discussion Forum</B></I></U></A></div> <div> <A HREF="id138.htm" TARGET="_top" TITLE="Course Syllabus Psy 211"><U><I><B>Psy 211-Course Syllabus</B></I></U></A></div> <div> <A HREF="id297.htm" TARGET="_top" TITLE="Lessons and HandoutsPsy 211"><U><I><B>Psy 211-Lessons and Handouts</B></I></U></A></div> </td> <td valign="top" height=340 BGCOLOR="#CCFF66" TEXT="#080000"> <div> <B> </B><FONT SIZE="7" COLOR="#000099" FACE="Times New Roman" ><I>Ethics in Research</I></FONT></div> <bR> <DIV ALIGN="LEFT"></DIV> <div> <B>Ethics Information</B></div> <bR> <div> <A HREF="http://www.apa.org/ethics/index.aspx" TARGET="_top" TITLE="http://www.apa.org/ethics/index.aspx"><U><B>Overview</B></U></A></div> <div> The ethics home page at the American Psychological Association. Includes links to the ethical principles of psychologists and code of conduct; APA's Ethics Committee rules and procedures; Guidelines for ethical conduct in the care and use of animals; and, research with animals in psychology. <I><B>Each link is listed separately below.</B></I></div> <bR> <div> <B>British Code of Ethics and Conduct by the British Psychological Society</B></div> <div> <B> <a href="HTMLobj-4548/British_code_of_ethics_and_conduct_for_Psychologists.pdf"><u>British_code_of_ethics_and_conduct_for_Psychologists.pdf</u> </a>  </B></div> <bR> <div> <A HREF="http://www.apa.org/ethics/code/index.aspx" TARGET="_top" TITLE="http://www.apa.org/ethics/code/index.asp"><U><B>Ethical Principles of Psychologists and Code of Conduct</B></U></A></div> <div> Outlines the ethical code of conduct that psychologists should follow in their professions. Includes detailed information on the protection of human and animal subjects.</div> <bR> <div> <A HREF="http://www.apa.org/ethics/code/committee.aspx" TARGET="_top" TITLE="http://www.apa.org/ethics/code/committee"><U><B>APA's Ethics Committee</B></U></A></div> <div> An overview of the work, mission and goals of the Ethics Committee. Provides rules and procedures of the committee.</div> <bR> <div> <A HREF="http://www.hhs.gov/ohrp/assurances/irb/index.html" TARGET="_top" TITLE="http://www.hhs.gov/ohrp/assurances/irb/i"><U><B>Institutional Review Boards</B></U></A></div> <div> IRBs must approve proposed non-exempt research before involvement of human subjects may begin.</div> <bR> <div> <A HREF="http://www.hhs.gov/ohrp/irb/irb_guidebook.htm" TARGET="_top" TITLE="http://www.hhs.gov/ohrp/irb/irb_guideboo"><U><B>Institutional Review Board (IRB) Guidebook</B></U></A><FONT SIZE="3" COLOR="#330099" FACE="Arial Narrow" ><A HREF="http://www.hhs.gov/ohrp/irb/irb_guidebook.htm" TARGET="_top" TITLE="http://www.hhs.gov/ohrp/irb/irb_guideboo"><U><B> </B></U></A></FONT><FONT SIZE="3" COLOR="#CC0066" FACE="Arial Narrow" ><I>(Link down, please click on PDF to view the Guidebook)</I></FONT></div> <div> An overview of the instituitional review board. Includes history of the human subjects protection system, the Belmont report and suggestions for further reading.<B> Click on the hyperlink below to open the PDF.</B></div> <bR> <DIV ALIGN="LEFT"></DIV> <div> <B> <a href="HTMLobj-4549/OHRP_IRB_Guidebook.pdf"><u>OHRP_IRB_Guidebook.pdf</u> </a>  </B></div> <bR> <div> <A HREF="https://www.ushmm.org/information/exhibitions/online-exhibitions/special-focus/doctors-trial/nuremberg-code" TARGET="_top" TITLE="https://www.ushmm.org/information/exhibi"><U><B>The Nuremberg Code</B></U></A></div> <div> The code that led to the development of ethical principles in working with human subjects.</div> <bR> <div> <A HREF="http://www.hhs.gov/ohrp/humansubjects/guidance/45cfr46.html" TARGET="_top" TITLE="http://www.hhs.gov/ohrp/humansubjects/gu"><U><B>Code of Federal Regulations for the Protection of Human Subjects</B></U></A></div> <div> Regulations for the protection of human subjects.</div> <bR> <div> <A HREF="http://www.hhs.gov/ohrp/index.html" TARGET="_top" TITLE="http://www.hhs.gov/ohrp/index.html"><U><B>Office for Human Research Protections, U.S. Dept. of Health and Human Services</B></U></A></div> <div> Overview of work of the advisory committee on human research protections and statement on children involved in research.</div> <bR> <div> <A HREF="http://ori.dhhs.gov/about-ori" TARGET="_top" TITLE="http://ori.dhhs.gov/about-ori"><U><B>Office of Research Integrity</B></U></A></div> <div> The Office of Research Integrity (ORI) oversees and directs Public Health Service (PHS) research integrity activities on behalf of the Secretary of Health and Human Services with the exception of the regulatory research integrity activities of the Food and Drug Administration. </div> <bR> <div> <A HREF="http://www.hhs.gov/ohrp/humansubjects/guidance/belmont.html" TARGET="_top" TITLE="http://www.hhs.gov/ohrp/humansubjects/gu"><U><B>The Belmont Report-Ethical Principles </B></U></A></div> <div> Guidelines for the protection of human subjects.</div> <bR> <div> <A HREF="http://www.fas.harvard.edu/~research/hum_sub/hsbib.html" TARGET="_top" TITLE="http://www.fas.harvard.edu/~research/hum"><U><B>Use of Human Subjects in Research: A Bibliography</B></U></A></div> <bR> <bR> <div> <I><B>Video and Tutorials</B></I></div> <bR> <bR> <div> <A HREF="http://youtu.be/h16Ujzw9VtA" TARGET="_top" TITLE="http://youtu.be/h16Ujzw9VtA"><U><B>History of Informed Consent</B></U></A></div> <div> An overview of the history and significance of informed consent in research in psychological science.</div> <bR> <div> <A HREF="http://youtu.be/jD-YCDE_5yw" TARGET="_top" TITLE="http://youtu.be/jD-YCDE_5yw"><U><B>Research Ethics</B></U></A></div> <div> An overview of the importance of ethics in  psychological science research.</div> <bR> <div> <A HREF="http://ori.dhhs.gov/TheLab/TheLab.shtml" TARGET="_top" TITLE="http://ori.dhhs.gov/TheLab/TheLab.shtml"><U><B>The Lab: Avoiding Research Misconduct--Ethical Decision Making</B></U></A></div> <div> In "The Lab: Avoiding Research Misconduct," you become the lead characters in an interactive movie and make decisions about integrity in research that can have long-term consequences. The simulation addresses Responsible Conduct of Research topics such as avoiding research misconduct, mentorship responsibilities, handling of data, responsible authorship, and questionable research practices.</div> <div> <B>**Highly Recommended!</B></div> <div> <B> </B></div> <bR> <bR> <DIV ALIGN="LEFT"></DIV> <div> <B>Ethics and Human Research</B></div> <bR> <div> <I><B>Henrietta Lacks</B></I></div> <bR> <bR> <div> <A HREF="http://magazine.jhu.edu/2010/06/immortal-cells-enduring-issues/" TARGET="_top" TITLE="http://magazine.jhu.edu/2010/06/immortal"><U><B>Immortal Cells, Enduring Issues</B></U></A></div> <bR> <div> <A HREF="http://magazine.jhu.edu/2010/06/editors-note-ethics-and-genetics/" TARGET="_top" TITLE="http://magazine.jhu.edu/2010/06/editors-"><U><B>Editor’s Note: Ethics and Genetics</B></U></A></div> <bR> <div> <A HREF="http://www.newsweek.com/2010/02/15/health-care-injustice.html" TARGET="_top" TITLE="http://www.newsweek.com/2010/02/15/healt"><U><B>Health-Care Injustice</B></U></A></div> <bR> <div> <A HREF="http://www.guardian.co.uk/world/2010/apr/04/henrietta-lacks-cancer-cells" TARGET="_top" TITLE="http://www.guardian.co.uk/world/2010/apr"><U><B>Henrietta Lacks's Cells were Priceless, but her Family Can't Afford a Hospital</B></U></A></div> <div> Tissues taken from cancer victim Henrietta Lacks in 1951 have made big profits for the drug companies, but today her surviving children can't afford health insurance.</div> <bR> <div> <A HREF="http://wired.com/magazine/2010/01/st_henrietta" TARGET="_top" TITLE="http://wired.com/magazine/2010/01/st_hen"><U><B>Henrietta Everlasting: 1950s Cells Still Alive, Helping Science</B></U></A></div> <div> In 1951, an African-American woman named Henrietta Lacks went to Johns Hopkins Hospital to be treated for cervical cancer. Unbeknownst to her, cells from her biopsy were made available to biological researchers.</div> <bR> <div> <A HREF="http://www.cbsnews.com/news/the-immortal-henrietta-lacks/" TARGET="_top" TITLE="http://www.cbsnews.com/news/the-immortal"><U><B>The Immortal Henrietta Lacks: The Gift of Immortal Cells</B></U></A><B> </B></div> <div> A CBS News Report on Henrietta Lacks.</div> <bR> <div> <I><B>     </B></I><FONT SIZE="5" COLOR="#0000CC" FACE="Arial Narrow" ><I><B> Videos on Henrietta Lacks</B></I></FONT></div> <bR> <div> <A HREF="https://youtu.be/MF6HrEkZMOo" TARGET="_top" TITLE="https://youtu.be/MF6HrEkZMOo"><U><B>Rebecca Skloot on “The Immortal Life of Henrietta Lacks”</B></U></A><B>  </B></div> <div> Extended discussion with author Rebecca Skloot, author of the best-selling book, “The Immortal Life of Henrietta Lacks.” Johns Hopkins University announced plans this week to name a new research building after Lacks, an African-American woman who permanently changed modern medicine nearly 70 years ago when it was discovered that her cells could live forever. These “immortal cells” have helped scientists produce remedies for numerous diseases, including the first polio vaccine, that have saved hundreds of thousands of lives. But Lacks’s cells were taken without her consent when she was a patient at Johns Hopkins University Hospital in 1951.</div> <div>  <iframe width="560" height="315" src="https://www.youtube.com/embed/MF6HrEkZMOo" frameborder="0" allow="accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture" allowfullscreen></iframe>  </div> <bR> <div> <A HREF="https://youtu.be/tnUp0xQlfK8" TARGET="_top" TITLE="https://youtu.be/tnUp0xQlfK8"><U><B>Rebecca Skloot: The Story of HeLa</B></U></A></div> <div> <B> <iframe width="560" height="315" src="https://www.youtube.com/embed/tnUp0xQlfK8" frameborder="0" allow="accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture" allowfullscreen></iframe>  </B></div> <bR> <div> <A HREF="https://youtu.be/WU5uCiV0MyQ" TARGET="_top" TITLE="https://youtu.be/WU5uCiV0MyQ"><U><B>Henrietta Lacks-The Immortal Woman</B></U></A></div> <div> <B> <iframe width="560" height="315" src="https://www.youtube.com/embed/WU5uCiV0MyQ" frameborder="0" allow="accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture" allowfullscreen></iframe>  </B></div> <bR> <div> <A HREF="https://youtu.be/bm1q0TSFRMU" TARGET="_top" TITLE="https://youtu.be/bm1q0TSFRMU"><U><B>Henrietta Lacks' 'Immortal' Impact on Medical Research</B></U></A></div> <div> Henrietta Lacks died 62 years ago, but her cells -- known as HeLa -- live on through scientific research, having led to world-changing medical advances for decades. Margaret Warner talks to Dr. Francis Collins of the National Institutes of Health about a new agreement made with the Lacks' family over control of her DNA legacy.</div> <bR> <div> <B> <iframe width="560" height="315" src="https://www.youtube.com/embed/bm1q0TSFRMU" frameborder="0" allow="accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture" allowfullscreen></iframe>  </B></div> <div> <A HREF="http://www.youtube.com/watch?v=rlINobLQvlg&feature=youtu.be" TARGET="_top" TITLE="http://www.youtube.com/watch?v=rlINobLQv"><U><B>Henrietta Lacks Family </B></U></A></div> <bR> <div> <A HREF="http://www.youtube.com/watch?v=ODMOkNbkCXw&feature=youtu.be" TARGET="_top" TITLE="http://www.youtube.com/watch?v=ODMOkNbkC"><U><B>Panel Discussion: The Life and Legacy of Henrietta Lacks </B></U></A></div> <bR> <div> <A HREF="http://www.youtube.com/watch?v=497Scue9sdY&feature=youtu.be" TARGET="_top" TITLE="http://www.youtube.com/watch?v=497Scue9s"><U><B>Seeking Henrietta</B></U></A></div> <bR> <div> <A HREF="https://youtu.be/SPLSp7Tf3bw" TARGET="_top" TITLE="https://youtu.be/SPLSp7Tf3bw"><U><B>Henrietta Lacks | Her Impact and Our Outreach</B></U></A></div> <bR> <DIV ALIGN="LEFT"></DIV> <div> <I><B>     </B></I><FONT SIZE="5" COLOR="#0000CC" FACE="Arial Narrow" ><I><B> </B></I></FONT><FONT SIZE="4" COLOR="#330099" FACE="Arial Narrow" ><I><B>The Tuskegee Syphilis Experiment</B></I></FONT></div> <bR> <div> <A HREF="http://www.wanttoknow.info/humanguineapigs" TARGET="_top" TITLE="http://www.wanttoknow.info/humanguineapi"><U><B>Human Guinea Pigs</B></U></A></div> <div> History of Experimentation on Humans.</div> <bR> <div> <A HREF="http://www.infoplease.com/spot/bhmtuskegee1.html" TARGET="_top" TITLE="http://www.infoplease.com/spot/bhmtuskeg"><U><B>The Tuskegee Syphilis Experiment</B></U></A></div> <div> The U.S. government's 40-year experiment on black men with syphilis.</div> <bR> <div> <A HREF="http://www.highbeam.com/doc/1P3-917874541.html" TARGET="_top" TITLE="http://www.highbeam.com/doc/1P3-91787454"><U><B>Tuskegee's Truths: Rethinking the Tuskegee Syphilis Study</B></U></A></div> <div> Tuskegee 's Truths: Rethinking the Tuskegee Syphilis Study is an excellent edited collection that explores the notorious forty-year United States Public Health Service study of untreated syphilis in poor, African-American men. Editor Susan M. Reverby has crafted a commendable volume that consists of historical documents, artistic considerations, and scholarly analyses related to the experiment. Reverby's finest and most praiseworthy decision was to include opinions and arguments. </div> <bR> <div> <A HREF="http://www.infoplease.com/spot/bhmtuskegee1.html" TARGET="_top" TITLE="http://www.infoplease.com/spot/bhmtuskeg"><U><B><U>Tuskegee Syphilis Experiment </U></B></U></A></div> <div> History,facts, bad blood, bad science.</div> <div> <A HREF="http://www.npr.org/programs/morning/features/2002/jul/tuskegee/" TARGET="_top" TITLE="http://www.npr.org/programs/morning/feat"><U><B>Remembering Tuskegee</B></U></A></div> <div> Syphilis study still provokes disbelief, sadness.</div> <bR> <div> <A HREF="http://www.cdc.gov/tuskegee/timeline.htm" TARGET="_top" TITLE="http://www.cdc.gov/tuskegee/timeline.htm"><U><B>The Tuskegee Timeline</B></U></A></div> <bR> <bR> <DIV ALIGN="LEFT"></DIV> <div> <I><B>Videos on the Tuskegee Experiment</B></I></div> <bR> <div> <A HREF="http://www.democracynow.org/2010/10/5/the_dark_history_of_medical_experimentation" TARGET="_top" TITLE="http://www.democracynow.org/2010/10/5/th"><U><B>The Dark History of Medical Experimentation from the Nazis to Tuskegee to Puerto Rico | Democracy Now!</B></U></A></div> <bR> <div> <A HREF="http://youtu.be/HCYdI2b_9Vs" TARGET="_top" TITLE="http://youtu.be/HCYdI2b_9Vs"><U><B>The Deadly Deception-1993 Rare Documentary</B></U></A></div> <bR> <div> <A HREF="http://www.youtube.com/watch?v=-JP3Qa32IPw&feature=youtu.be" TARGET="_top" TITLE="http://www.youtube.com/watch?v=-JP3Qa32I"><U><B>The Tuskegee Syphilis Experiment</B></U></A></div> <bR> <div> <A HREF="http://youtu.be/x-YMdaEdbcg" TARGET="_top" TITLE="http://youtu.be/x-YMdaEdbcg"><U><B>The Tuskegee Syphilis Project</B></U></A></div> <bR> <div> <A HREF="http://www.allvoices.com/contributed-news/9614075/video/83440659-tuskegee-documentary" TARGET="_top" TITLE="http://www.allvoices.com/contributed-new"><U><B>Tuskegee Documentary-How Ethical is Ethical?</B></U></A></div> <bR> <div> <A HREF="http://www.c-spanvideo.org/program/168001-1" TARGET="_top" TITLE="http://www.c-spanvideo.org/program/16800"><U><B>Tuskegee Syphillis Study</B></U></A></div> <bR> <DIV ALIGN="LEFT"></DIV> <div> <B>Video on the Guatemala Experiment</B></div> <bR> <bR> <div> <A HREF="http://youtu.be/XydKHo8FNl4" TARGET="_top" TITLE="http://youtu.be/XydKHo8FNl4"><U><B>Researcher 'Floored' by Discovery of Intentional Infections in Guatemala</B></U></A></div> <bR> <bR> <DIV ALIGN="LEFT"></DIV> <div> <B>Radiation Experiments on African American Children </B></div> <bR> <div> <I><B> <iframe width="560" height="315" src="https://www.youtube.com/embed/78nFY_XbJzE" frameborder="0" allow="autoplay; encrypted-media" allowfullscreen></iframe>  </B></I></div> <bR> <DIV ALIGN="LEFT"></DIV> <div> <B>Eugenicist Movement in America: Victims Coming Forward</B></div> <bR> <div> <B> <iframe width="560" height="315" src="https://www.youtube.com/embed/Nshj9rCTPdE" frameborder="0" allow="accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture" allowfullscreen></iframe>  </B></div> <bR> <bR> <bR> <DIV ALIGN="LEFT"></DIV> <div> <B>Ethics and Animal Research</B></div> <bR> <div> <IMG SRC="75ae0530.gif" border=0 width="480" height="339" ALIGN="BOTTOM" HSPACE="0" VSPACE="0"></div> <bR> <div> <A HREF="http://www.apa.org/science/leadership/care/guidelines.aspx" TARGET="_top" TITLE="http://www.apa.org/science/leadership/ca"><U><B>Guidelines for the Ethical Conduct of the Care and Use of Animals in Research</B></U></A></div> <div> Outlines the American Psychological Association's policies and guidelines on the care and use of animals in research.</div> <bR> <div> <A HREF="http://www.peta.org/" TARGET="_top" TITLE="http://www.peta.org/"><U><B>People for the Ethical Treatment of Animals (PETA)</B></U></A></div> <div> People for the Ethical Treatment of Animals (PETA), with more than 2 million members and supporters, is the largest animal rights organization in the world.PETA focuses its attention on the four areas in which the largest numbers of animals suffer the most intensely for the longest periods of time: on factory farms, in laboratories, in the clothing trade, and in the entertainment industry. We also work on a variety of other issues, including the cruel killing of beavers, birds and other "pests," and the abuse of backyard dogs. PETA works through public education, cruelty investigations, research, animal rescue, legislation, special events, celebrity involvement, and protest campaigns. </div> <bR> <div> <A HREF="http://www.psyeta.org" TARGET="_top" TITLE="http://www.psyeta.org"><U><B>PSYETA</B></U></A></div> <div> Organization promoting animal welfare in psychology.</div> <bR> <div> <A HREF="http://www.apa.org/research/responsible/research-animals.pdf" TARGET="_top" TITLE="http://www.apa.org/research/responsible/"><U><B>Research with Animals in Psychology</B></U></A></div> <div> The reasons for animal use in research as outlined by APA.</div> <bR> <div> <A HREF="http://www.ccac.ca" TARGET="_top" TITLE="http://www.ccac.ca"><U><B>The Canadian Council on Animal Care</B></U></A></div> <div> An interesting site on the care and use of animals.  Includes an international workshop on development of science-based guidelines for laboratory animal care; and, facts and figures on animal use in research.</div> <bR> <bR> <bR> <bR> <bR> <bR> </td> </tr></table></body>